Writing Again

I’ve been MIA, but, I had my reasons. First I had a flu bug, which just put me out of commission. Flu Shots are not for me. I’m not sure what’s in that concoction. The side effects may be worse for me, cuz, frankly  I’m sensitive to medications.

Two days a week of physical therapy, is kicking my butt. I recently started an Adult Literacy Training Program that I am so excited to be a part of. I’ll be helping adults to improve their literacy skills. One part of the training is writing. I had to select an object and write about it for 30 minutes. I’ll share what I wrote.

Walking stick or cane, I have used one at different times in my life. Once, I broke my ankle and one was given to me after months of using, its cousin, Crutches. I graduated from you to gradually walking on my own again.

A few years later due to illness, pain and fatigue, I had to fight vanity and accepted the fact that I needed a cane. I had the belief that canes were for the elderly or the disabled. I  later accepted that I did have invisible disabilities. Canes were for those who needed the assistance. There’s nothing wrong with that, however, I didn’t think that was me. But, I had to accept that it was. As time passed, I fought my hidden feelings and opinions and challenged my life as a 47-year-old cane user.

Soon, I couldn’t go anywhere without you. You became my personal companion. We’ve become Inseparable, like that Natalie Cole song.  As people drifted away from me and didn’t include me in their life’s events, you were there. Perhaps, seeing you disturbed them, but we are a package deal.

I was in physical pain, but still I felt the stares from strangers. Kids seem to be drawn to you, perhaps it’s your bright and bold color. My last one was purple and you are cobalt blue. My thought was, if I have to use a cane, it might as well be fashionable. When kids, under 8, pass me, they look in awe at the metal in my hand. Their eyes follow my steps. They are walking forward while their heads turn backwards. It always makes me laugh and lift my spirits.

I like that I can fold you and not always have you visible.You were supposed to be a quick fix to help support my body, but you’ve been with me for three years and hanging on. I want a divorce from you, yet scared to quit you. My balance is bad, I sway to the side unsteadily, and I’ve fallen. Yes, I’ve fallen and couldn’t get up. I’ve violently met the sidewalk with my whole body, and it wasn’t pretty. Since you entered my life, I have managed to stay standing upwards.

I’m only 50 and have a lot of years ahead of me. I just can’t stay with you. I feel no one sees me. They see you first. I’m standing still and know their minds are wondering why I need you. I get asked by people who like your three-point legs and color, “Where did you get your cane?” “My mother needs one like that.”(Bummer)  😦

I get asked, “Did you hurt your leg?”

I never have any easy answer. Replying, I have fibromyalgia and chronic fatigue along with lower back and balance issues, just doesn’t roll off the tongue easily. I don’t think they understand that anyway. At times I say its my back, other times, I say balance problems.

You have helped me get out of chairs, in and out of cars without tripping over myself.  On the days I’m so fatigued or my back is aching so badly, that I can barely get up;  I appreciate you.

Very recently I started physical therapy and the goal is to “get me off that cane.” I hope you are not too upset.

She has me doing balance exercises and wall squats to strengthen my core. Painful, but I’m pushing through. Significant change will take time. I can’t stand for long periods, but I’m doing better. I couldn’t climb a flight of stairs at all. I’ve graduated very slowly, climbing up, stopping to rest, often, with you helping me all the way. I’m gasping and panting when I get to the top. They say I’m getting stronger and could be getting rid of you by the end of the summer.

We are walking farther now. I’m planning to walk around the track at the park with your help. Gradually our contact will become less and less. I’m happy and I’m honestly scared. I want you gone, but afraid of swaying my way upstairs or falling and hitting the concrete. It hurts like hell during and after that type of event. It puts holes in the knees of my pants. My budget can’t afford new clothes.

My pride gets taken away and my self-assurance gone. How will I be able to handle our breakup?  Is this what’s called a dysfunctional relationship?  I think so. We have done so much together. I don’t know if I can get along completely on my own.

I’d like to walk and not get weary. My new orthotics are helping.  I’d like to do things on two feet instead of three. I’d like the questions to stop and for people to ignore the obvious. I have trouble walking on my own. Looking at me, minus the cane, I look like nothing is wrong with me. Looks can be deceiving.

I am strong in other ways. I know there are people who need a cane and refuse to use one. That used to be me. Maybe they can adopt you  when I put you away for the last time. For me, it will show my progress. There will be joy and jubilation, tempered with some trepidation.

However,  I am a survivor and I’ve been through a lot. This is another obstacle to persevere through and overcome.  My cane and I will be together for just a bit longer….just a little bit…

 

 

 

 

 

 

 

 

 

 

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Wrapping Up and Going Forward

When I thought about starting a blog, late last year, I wasn’t sure what I would write about. I knew I wanted to write and use my gift, but I didn’t know how I would take the thoughts in my head and make them meaningful enough for readers. I have never been a poet or one who very consistently kept a journal, as much as I tried. However, I knew there were stories, ideas and great writing inside of me that I wanted to share.

I soon realized that I could best write about myself, my experiences and life events. I was about to journey into my last year of my forties. I was  determined to be more courageous so I  moved ahead. Privately, I dubbed this journey, my Year of  49. I would follow myself down this pathway and see where I ended up. I wanted this year to have meaning, be fun and have some adventures.

I wanted to go to Las Vegas to celebrate my actual 50th birthday, something completely out of the ordinary for me. I have always played safe and by the rules. I could celebrate in warm weather for only the second time in my life with some family members; maybe bring in the new year on the west coast. It was discussed and agreed upon. It would be happening and I didn’t have to plan  it. I would be taken care of. Yay!

So, I decided to do things this year I wanted to do, fibromyalgia be damned. The money would come from somewhere. I would just chant triple the amount of nam myoho renge kyo than usual, so that I could physically be up to it.

I had a ticket to see Diana Ross in concert and that started the ball rolling for me to also see Gladys Knight, Guy, Jill Scott, Stephanie Mills and The Whispers in concert. Music gets me though the toughest days. I wrote about all these musical experiences and how they made  me happy, even though I sat through most of them in pain. I fought through it and won.

I suffered tremendous physical pain this year and I spent much time indoors, resting and also dealing with chronic fatigue. I am no longer able to hold a job, as my illness and pain levels are completely unpredictable. Living with and living on disability is not easy. I’m doing my best to live a good life and have faith both situations will change for the better.

This year, I had a few inpatient medical procedures done to help my migraines.  I had aqua therapy to help the sciatica like pain running down my leg like shock waves. I had trouble sitting, standing and walking. All this was happening while dealing with the house guest from hell who threw a big monkey wrench right in the middle of my weight loss plans. Medication side effects and frustrated stress eating made a girl gain weight. Sigh……  I wanted to be slimmer and healthier by my birthday, but I got frustrated; I restarted a couple weeks ago and this time I’m making a lifestyle change. Nothing or no one will interfere with my progress again.

I wrote about my life as a person dealing with fibromyalgia. It was my most read and shared post.I was very proud of that post. It was relate-able to anyone with a chronic pain condition.

I follow news events and many touched my heart. I was angered or saddened by them, so I wrote about them. I wrote about personal sorrows and losses. I became more open about myself, more than I have ever been.

I  wrote about the importance of my faith and how it helps me to grow into the person I am meant to be. I want to create value with and for my life. I volunteer once a month to record readings of  SGI-USA publications on tape, for members who are visually impaired or unable to read them for themselves. I’m happy to contribute in this way to my fellow Buddhists.

The news events of 2015: mass shootings, domestic and foreign terror, police brutality, innocent Black Lives not mattering, slack gun control laws, presidential candidates spouting bigotry and spreading fear; it all became too much for my senses.

My faith and my humanity tells me and shows me all of this is wrong. Should I be packing my bags and leaving my homeland before it all goes awry? The hate filled tones may be coming towards me and my kind next. History shows this is possible.  My writing desires waned and I got stuck somehow. I haven’t made a blog post since September.

My year of 49 has two weeks left. I had a 50th birthday celebration in August, with women I have known since elementary school on an evening cruise with our teachers. We all turned 50 this year.  It was a great time and there was cake, 🙂  I really feel a kinship with them even though we don’t see other regularly.

My trip to Las Vegas never took off, I don’t even know what happened to it. I’m disappointed. So, the idea remains on my vision board.Next time, I’ll take control of my own plans.

Since the plans were altered,I didn’t know how I would bring in this milestone birthday. I wanted to do something I never did before. I refused to stay at home. I could do that any night of the year.

I was gifted a ticket to see a show, by the same Uncle who bought me a new bed this year (I’m so grateful to him); so that’s how I’ll spend my special day. I’ll see a production I’ve wanted to see for years. I have mused my way towards 50. I will continue writing this blog . I will be more consistent with it.

I want my 50’s to be incredible. I want better health. I want romance with real commitment. I want to walk without a cane. I want to travel to an SGI-USA conference. I want to meet my uncle and cousin. I want to stick to my healthier eating plans and get my sexy back. I want better finances and become debt free. I want to volunteer to help others to the best of my capacity. Helping others, helps me to grow.  I strive to be the person Buddhism,teaches me, I can become. I want my life to matter when people see me. I want the world to be safe, free from the worst humans can do to humans. I want supreme happiness for myself and for everyone.

I wish myself a Happy Fiftieth Birthday!!!!

The Christmas season is upon us and a new year is about to start. Let’s see what wonders will come in 2016. I’m taking control of my life and being true to myself. I will create a greater life for myself in my 50’s . Thank you all for reading and I wish you all a happy and healthy holiday season filled with joy!

 

 

Catching Up

It’s been awhile since I wrote a new post. I just decided to do a bit of a followup on some of my posts.

My mind has been a bit cloudy of late and i have been having trouble putting my words together. Insomnia, back pain, shooting leg pains from sciatica  and a compressed nerve in my back have kept me awake at night. I also had new health diagnoses which I emotionally had to deal with. I like to make sense when I write, so I took a hiatus.


I have a few updates:  I love the new bed I received from my Uncle. It vibrates. The head and bottom raise up and down by wireless remote control. The first night I vibrated, wave massaged and raised it up and down, hundreds of times.  I’ve calmed down. I raise up and down only once or twice a day. The first week the bed was on wheels, but since I have hardwood floors, I was rolling every time the bed moved or I tried to sit on it, LOL. I called the company and they came to put on rubber casters to save me from rolling out of my bedroom door.

Last weekend, I fulfilled a life long dream as I returned to the Kings Theatre. I saw The Empress of Soul, Gladys Knight in concert. She was magnificent and I was on a Gladys high for days. She sang all about love, sang all her greatest hits, including Neither One of Us. I teared up a bit when she sang, The Way We Were. She put all of her voice into every note and I detected a catch in her voice at the end. She then talked about friends who had passed away, including the late Marvin Gaye. Former Pip and Gladys’ big brother Bubba came on and had his own little portion of the show, including singing Happy by Pharell Williams. She had a hard time getting the show back from him, LOL. Gladys’ voice has always done something to me because it’s filled with richness. Diana Ross has the flash, Gladys has the voice. I was really happy that I made it to the show. I was recovering from a 2 day migraine, but Gladys was not to be missed. If I ever fall into a coma, please play Gladys at my bedside, I will surely awaken.


I was awed and amazed at the response I received from my last post about Fibromyalgia Awareness Day. I spoke for many in my description of living with fibro. It is not an easy road that we travel and sometimes the road is filled with many bumps and detours.

Many people who deal with chronic illness deal with some level of depression. Let’s face it, if you were hurting all the time, your life and very being had changed overnight, depression may chase you too. There is confusion and feelings of loss of your former self. I have fought with depression and was brought to the very brink of despair.

I felt so lost, pained and alone thinking that this was all that was left for me. I couldn’t chant and felt no one understood what I was going through. I was unhappy for a myriad of reasons. I didn’t care anymore and thought that was okay. One night I took some prescribed sleeping pills, because that MF insomnia had me up for five days straight. I took a few extra pills, not caring if I woke up the next day. I wanted to rest and have peace and not pain in my body. I cried because I woke up. (Damn, I can’t even do this suicide thing right. That is what my brain told me, SMH)


After a serious crying jag for hours and talking with someone, I sought medical help and was diagnosed at the hospital with major depression and anxiety. I was put on medications to help me and also started going to therapy to finally talk about issues from my childhood to adulthood. Therapy and also learning how to use my faith to uplift me in dark moments were the greatest gifts I received from that life moment.


A few of my Buddhist sisters were the first people to visit me in the hospital. For the first time in months, I chanted. It’s a memory I will always treasure. The compassion that they showed me made me feel very loved at a time when I felt empty. At that time I had not really, reached out to people who could and would have helped me on the path. They could have shown me how to utilize my faith and still get medical help. Buddhism is reason and I wasn’t using it.

Many years later, I’m no longer taking medications, but I still go to therapy, because there are many bumps and detours on the road of life. Depression can be a long battle for most people who have experienced it. I have fought and won over the major hurdles.  I plan to live, live well and live the greatest life possible, filled with happiness no matter the circumstances that I am facing.


I reveal myself so transparently because June is Mental Health Awareness month.

We don’t know what other people are going through. They may appear fine, but be in a dark place. Your health is important, Your mental health is also important. You are not “crazy to take medication for your mental health. Don’t refuse to see a “head shrinker” because no one in your family ever did it. In order to open our lives and change it, we have to do something different from what we are accustomed to.  There are many people trained to help us get out of the darkness. If you see someone who seems down, be kind to them. Kind words without judgement is what they need. Everyone could use a helpful and compassionate ear. Compassion is sorely lacking in our world.


I chant Nam myoho renge kyo to uplift me and I read encouraging guidance and books from SGI President Daisaku  Ikeda. He reminds me, I have a mission for my life and it is to help others and show them through my life that they can be happy. We call this actual proof. I know I went through the hardest struggle so I can encourage other people, as I am now on the other side of depression.


My faith keeps me on the right path through this journey of life. No matter what, I will continue to chant everyday, morning and evening prayers to stay the course and never give up. That is what my Buddhist faith has taught me.